Greetings ,

Exciting new opportunities and resources highlighted in this Pinwheel Pages!

This issue is filled with invaluable insights designed to inspire patients, families, and healthcare professionals.

As you explore these resources, you'll discover the potential for collaboration and growth and commitment to patient- and family-centered care.

Kind regards,

The IPFCC Team

Upcoming Informal Conversation

September 10, 12 – 1 pm ET

Save the date, September 10, 2025, for a continuation of June 18th's Better Together: Supporting Family Presence and Participation to Improve Safety and Quality Informal Conversation. Registration details forthcoming.

Thank you to our PFCC.Connect Sponsors!

Resources and Opportunities

Supporting Trust and Autonomy for Every Birth

This article, "Effect of TeamBirth on Patient Trust and Autonomy During Childbirth in Oklahoma", is available online in the Journal of Obstetrics, Gynecological, and Neonatal Nursing. It describes a specific approach — a TeamBirth huddle at the bedside which includes nurses, staff, clinicians, birthing person and support person and its effect on patient trust and autonomy in decision-making during childbirth. The findings reported that the TeamBirth huddle had a positive impact which suggests that it has potential to improve equity, patient outcomes, and childbirth experiences. Access the article here.

Pediatric Bill of Rights

This article, "Society of Pediatric Nurses Pediatric Bill of Rights," published in 2025 in the Journal of Pediatric Nursing, presents an updated version of the pediatric Bill of Rights. It includes two versions — Bill of Rights for children and for families. It emphasizes the importance of making care respectful, patient- and family-centered, culturally sensitive, and emotionally supportive to foster respect, safety, and shared decision-making. Access the article here.

Exploring Perspectives of Families of Infants Receiving a Diagnosis of Cerebral Palsy or Designated as High Risk

The article, "Caregiver Perceptions of Communication About Early Cerebral Palsy or High-Risk Designation in Infants," published July 2025 in JAMA Network Open, describes a qualitative study exploring families' perspectives of receiving a diagnosis of cerebral palsy (CP) or designated as high risk for CP (HRCP). Findings reported that early diagnosis, clear and compassionate clinician communication, preparation for what to expect, and next steps to address CP and HRCP were considered to be helpful by families, although these were not always what all families consistently experienced. Access the article here.

Save the Date for This Important Webinar

Register for this free virtual research meeting hosted by AHRQ’s Consumer Assessment of Healthcare Providers and Systems (CAHPS^®) focused on the integral role of patients and families in the development and implementation of care experience assessments and quality improvement strategies. The title of this meeting is “Elevating the Role of Patients and Families in Assessing and Improving the Experience of Care” being held on September 18th from 11 am to 3 pm ET. More information about registration will be available soon.

Remembering Dr. Lucian Leape

It is with great sadness that all of us at IPFCC honor the passing of Dr. Lucian Leape, a leader who leaves behind a powerful legacy in healthcare safety and quality improvement. Dr. Leape was a formidable early champion for patient safety and for reducing preventable medical errors, pioneering efforts that profoundly shaped the field. He understood the importance of partnerships with patients and families. His crucial contributions extended to serving on a subcommittee instrumental in developing two seminal reports: "To Err is Human: Building a Safer Health System" and "Crossing the Quality Chasm," which continue to guide healthcare transformation. He was the founder of the Lucian Leape Institute, established in 2007, which merged with the Institute for Healthcare Improvement in 2017. His enduring influence and spirit will undoubtedly guide commitment to safe, effective, efficient, timely, patient-centered, and respectful care for generations to come.

2025 IPFCC PINWHEEL SPONSORSHIP – Renew, Upgrade, or Join Now! 

Pinwheel Sponsors may join Bev Johnson for our next Pinwheel Leadership Forum on October 9th and collaborate with other Pinwheel Sponsor leaders.

We invite you to renew, upgrade, or join as a Pinwheel Sponsor today by completing the online Pinwheel Sponsor Application. If you need more information, please contact Sherry Hajec at shajec@ipfcc.org.

Thank You to Our 2025 Pinwheel Sponsors!

PFCC.Connect

University Health

Health System

Vanderbilt University Medical Center

Hospital/Organization

Akron Children’s Hospital

American College of Radiology

Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

Moffitt Cancer Center 

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center

Tallahassee Memorial HealthCare

Thunder Bay Regional Health Sciences Centre

University of Miami Health System

University of New Mexico Children's Hospital

Wellstar MCG