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Greetings,
We're excited to share that the May issue is your essential guide for patients, families, and healthcare professionals. Inside, you'll find valuable insights and resources that can truly make a difference!
Join us for an engaging Informal Conversation on Securing Funding for PFAC and PFA Programs on May 28th at 12 PM ET. This is a fantastic opportunity to collaborate, share ideas, and learn how to navigate funding opportunities for important programs.
Don't miss out on this chance to connect and enhance your initiatives!
With thanks,
The IPFCC Team | | | |
Upcoming Informal Conversation
Securing Funding for PFAC and PFA Programs
May 28th 2026 12-1pm EDT
“Securing Funding for PFAC and PFA Programs” will be held on Thursday, May 28th from 12-1pm EDT. Bev Johnson, IPFCC President & CEO will present and facilitate a conversation about funding in these challenging times.
Topics will include building relationships with hospital and health system leadership, the hospital foundation and the development office, as well community engagement personnel and community and local foundation leaders.
The importance of a PFAC and PFA Program Annual Report and an Annual Meeting that convey the values and outcomes of these partnerships will also be discussed.
Plan to share your successful strategies during this session.
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Thank You to Our PFCC.Connect Sponsors | |
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William E. Schwab Recipient of the Thomas W. Johnson Award |
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Bill Schwab was recently recognized with the Thomas W. Johnson Award For Career Contributions to Family Medicine Education. In his 40-year career in Family Medicine, he educated over 600 residents and many medical students.
He has served on IPFCC’s Board of Trustees since its founding in 1992. He is a beloved IPFCC faculty member, serving as faculty for over 40 seminars. To learn more about Bill and his commitment to partnerships with patients and families, his leadership, and his role as an educator and mentor of future leaders.
It is important to note that Family Medicine residency programs are now required to partner with a patient/family/community advisory board to guide their practice.
To learn more about Bill and his commitment to partnerships with patients and families, his leadership, and his role as an educator and mentor of future leaders.
It is important to note that Family Medicine residency programs are now required to partner with a patient/family/community advisory board to guide their practice.
For further information, see the ACGME program requirements.
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Resources and Opportunities | | |
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The National Academy of Medicine (NAM) has published the paper, "Centering What Matters: Aligning Action with Individual and Community Health Goals." Across health care, public health, and health sciences, decisions are often driven by institutional priorities rather than the goals of individuals and communities.
Individuals and communities are often treated as passive recipients and not active partners.
That is why a centering what matters approach is so important.
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Impact Report from The Patient Revolution
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The Patient Revolution (TPR) published "Cultivating the Conditions for Care: Impact Report April 2026." The report describes how TPR builds the capacity for individuals and organizations to rethink how care is designed, delivered, and governed through its School, Community, and Greenhouse. The report highlights practices and strategies to support moving from industrial healthcare to careful and kind healthcare.
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Integrating Theory and Practice for Rigorous Quality Improvement Design |
This article, published in Frontiers in Health Services, "Integrating Theory and Practice: The Core Components Guide for Rigorous Quality Improvement Design," featured practices and strategies for teams. It encourages teams to codesign with people with lived experience, those who have subject matter expertise, and those who are directly involved in the system of focus.
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The SCAN Foundation's Annual Report: At Home In Community |
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The SCAN Foundation (TSF) posted the 2025 Annual Report, "At Home. In Community. A More Equitable Future for Aging." It focused on four pillars to support aging in: -
Advancing Long-Term Care Reforms
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Integrating Health and Social Supports in Medicare
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Promoting Promising Models of Integrated Care for People Eligible for Medicare and Medicaid
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Championing Multisector Plans for Aging
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AgingINnovation Conference Now Open for Registration |
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AgingINnovation Conference is being held in Denver, Colorado from August 10-13, 2026. People-first living is the foundation of better aging and better business.
When people, not systems, lead the way, care improves, teams stay longer, and performance follows.
That’s why leaders return to the AginingINnovation 2026 conference year after year—for honest conversations about what’s working, what’s broken, and what must happen next.
From the C-suite to the front line, across every care setting, AgingINnovation 2026 delivers real dialogue, practical strategies, and actionable solutions you can implement immediately, so you can put people, not systems, at the center of care.
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Family-Centered Taskforce Releases a Presence Study Toolkit |
The Family Centered Care Taskforce is a multicenter collaborative dedicated to quality improvement in family-centered care in the NICU.
The Taskforce has just released the Presence Study Toolkit, a practical guide designed to help NICU leaders, care teams, and families.
“Presence isn’t extra. Presence is care.” The Taskforce believes that “every family in the NICU deserves care that honors their identity, recognizes their individual needs, and promotes trust, healing, and resilience.”
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Essential Yet Out of Reach: Home Accessibility for Children with Disabilities Webinar |
The Lucile Packard Foundation for Children’s Health is hosting this webinar on home modifications, including what they are, why they matter, and how they can help improve safety, independence, and well-being for children with disabilities and their families.
The first of a two-part webinar series will be held on Thursday, May 21st at 10am PT/12pm CT/1pm ET. It will introduce Foundation-funded research on the national landscape of programs and policies that support home accessibility for children with disabilities and their families.
A panel of experts, including those with lived experience, will discuss common barriers to accessing these supports, the real-world impacts on children and families, and opportunities for action and advocacy.
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2026 IPFCC PINWHEEL SPONSORSHIP
Your support as a Pinwheel Sponsor is vital!
By partnering with IPFCC, you play a crucial role in transforming healthcare through the development and sustainability of meaningful partnerships with patients and families in all settings.
As a Pinwheel Sponsor, your organization will gain national and international visibility, showcasing your commitment to patient and family-centered care.
Join us in making a profound impact on the healthcare community and elevating the voice of patients and families!
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Thank you to our sponsors! |
PFCC.Connect
University Health
Kaiser Permanente
Health System
Vanderbilt University Medical Center
Hospital/Organization
Akron Children’s Hospital
American College of Radiology
Children’s Mercy Kansas City
Children’s Specialized Hospital
IWK Health Centre
Luminis Health Anne Arundel Medical Center
MHA Keystone
Moffitt Cancer Center
Penn State Health Milton S. Hershey Medical Center
Tallahassee Memorial Healthcare
Thunder Bay Regional Health Sciences Center
University of Iowa Stead Family Children's Hospital
University of New Mexico Children’s Hospital
University of Miami Health System
Wellstar MCG | | | | | | |
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Institute for Patient- and Family-Centered Care
PO BOX 6397
McLean, VA 22106-9998 | |
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