Guidance Publications and Resources
IPFCC also produces a variety of publications. The following will be helpful to those wanting to create and sustain partnerships with patients and families in the education of students and clinicians.
Essential Allies—Patient, Resident, and Family Advisors: A Guide for Staff Liaisons
Provides a practical, how-to-guide for staff who are responsible for coordinating partnerships with patient and family advisors and patient- and family-centered programs. A flash drive containing over 200 tools and materials is included.
Privileged Presence: Personal Stories of Connections in Health Care (2nd Ed)
Offers a collection of over 65 stories that reflect experiences from the points of view of compassion, communication, collaboration, respect, and dignity...or their absence. Stories are told by patients, families, nurses, doctors, and other health care professionals and serve as a valuable resource for health professional education.
Words of Advice: A Guide for Patient, Resident, and Family Advisors
Offers a workbook for individuals who are new to advisory roles. Self-reflection tools and exercises to help identify skills and interests are included, as well as “words of advice” from experienced advisors. Includes guidance for serving as presenters and faculty in educational programs.
Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities
Provides a framework, steps, and tools for senior leaders to use to create and sustain partnerships. Best practices from over 130 exemplary organizations provide concrete real-world examples including from academic and other educational settings.